Speech and language difficulties in Huntington’s disease: A qualitative study of patients’ and professional caregivers’ experiences
Findings shed a light on everyday communication challenges faced by people with HD and their professional caregivers, and the lack of implementation of communication aids in this group. The dramatic impact of HD on patients’ communication skills underscores the need to include SLTs in the follow-up of this patient group, ideally from the early stages of the disease, while the patient is still capable of voicing his/her own wishes and thoughts. Future research that explores how to optimize communication and implement the use
of AACs for individuals with HD is needed
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Thea Nygaard Grimstvedt, Jeanette Ullmann Miller, Marleen Regina van Walsem and Kristin J. Billaud Feragen